Saturday, October 24, 2009

Cerebral palsys? help. worried parents?

hi, i am the mother of a 19 month old girl, who is not yet walking. she has very bad flat feet and walks on the inside of her little feet, she has special orthotic shoes that help her. since she was 8-10 months we noticed a delay in her gross-motor development. she is behind on everything except talking, which she is great at. she didnt kow how to sit up properly till after she was a year old and still i not very steady, she seems to slump to the side when sitting and lays agaisnt anything so she doesnt have to hold herself up. she is only crawling on all fours now at 19months. she has been to a child specialist she has had P.threapy. she has seen a orthopeadic(who said..she was grand and did an x-ray on her hips %26amp; said she was fine)..she seen a pediatriction.who now told us she "might" have cerebral palsys, now we have2 see a neurologist. when standing she cant hold her weight on her legs espically her left. i am a worried mother...help...anyone with same worries???? thanks

Cerebral palsys? help. worried parents?
no matter what the doctors tell you, you just love her and help her achieve her full potential. Don't measure her against "normal " kids because she will always fall short. You have to measure the progress she has made herself. so what if she isn't running and climbing like other 19 month olds...she has learned how to sit and crawl, and that is a big thing for her.





my son has a speech delay. it is hard to tell people that he "doesn't talk much" in the same sentance as telling them that he is 2 1/2. He has made so much progress in the last 3 months, but is still only putting together about 3 words at a time. they don't understand. When he was your daughters age he broke his leg and was in a body cast for 5 weeks. he was so stubborn that he climbed a flight of steps IN THE CAST the week before the cast came off. he walked for 3 of the 5 weeks he was in the cast...that is very unusual.





don't baby your daughter just because she has physical disabilities. give her a chance to figure out how to do things herself (with modifications when needed). a friend of mine has spina bifida ( a hole in her spine). at 16 years old she had a job, drove a car, and did her fair share of the household chores. she actually dropped her crutches at the front door of her house, and had her own kind of crawl she did in her house. she did laundry, dishes, cooked, whatever. I knew a friend of hers who was the youngest of 9, and also had SB his whole family babied him. at 26 years old his mommy still helped him out of the bathtub, and picked up his dirty laundry. he didn't even get up and make a sandwich if he wanted one...mommy did it. if she hadn't finally put her foot down he would have had no self help skills at 39 years old.
Reply:I wish I knew I feel bad for you . I dont know what to say but Im rooting for you good luck.
Reply:My youngest just started to walk, she's not very good at it. The doctors say she's fine even though she doesn't talk and learned to do things later then most children do. If you child is diagnosed with cerebral palsys all you can do is give her the best care and love you can. Good luck and I'm sure nothing will be too bad. You'll be fine and you can handle whatever you have to face.
Reply:There are lots of issues that effect walking. Even if she does have cerebal palsy I can tell already that she is on the good end of things. I cared for my cousin who has cerebal palsy, she cant walk, hardly can crawl, she cant speak or even eat on her own. Probably all that is going to be needed is alot of help with your daughter's gross moto developement. Therapies have come along way now with these issues. Once you get a diagnosis, be diligent in her treatments. It wil be harder, I wont lie, but she has quite a great chance of living a very normal life.
Reply:Believe me...you are doing the best for her by going to the doctors and finding out what is wrong with your daughter. If she does have cerebral palsy, (or whatever the disablility might be) it doesn't mean she can't still lead a full life. She may be slower in walking, sitting up and other things, and she may need help in some of these areas, whether it's human help or mechanical help (crutches, a walker, a wheelchair), but she can achieve as far as she wants to achieve. The fact that she is great at speaking is on her side. I work with a therapuetic riding program and I've worked with children with cerebral palsy for over 20 years and even though their bodies might not work as well as 'normal' humans...they can still do just about anything they put their minds to.


It's normal to be worried, but your concern and love..and wanting the best for your child...will help her no matter what the case may be. Just remember to treat her as normal as possible and let her know nothing can stop her. :)



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